{"id":46708,"date":"2024-10-28T12:18:45","date_gmt":"2024-10-28T09:18:45","guid":{"rendered":"https:\/\/lovin.co\/riyadh\/en\/?p=46708"},"modified":"2024-10-28T13:23:53","modified_gmt":"2024-10-28T10:23:53","slug":"young-saudi-woman-sparks-awareness-for-butterfly-skin-patients","status":"publish","type":"post","link":"https:\/\/lovin.co\/riyadh\/en\/latest\/young-saudi-woman-sparks-awareness-for-butterfly-skin-patients\/","title":{"rendered":"Young Saudi Woman Sparks Awareness For Butterfly Skin Patients"},"content":{"rendered":"

Abrar Al-Othman, a young Saudi woman born with Epidermolysis Bullosa (EB), a rare genetic disorder often referred to as \u201cbutterfly skin,\u201d has achieved her dream of providing a platform for those affected by the condition!<\/h2>\n

Through the creation of her nonprofit organization, The Butterfly, Al-Othman has transformed her personal journey into a national movement.<\/p>\n

Living with EB, which causes fragile skin to blister from minimal contact, has not been easy<\/h2>\n

\"Young<\/p>\n

A decade ago, Al-Othman began to openly share her story, using social media as a tool to spread positivity and inspire others in similar situations. She has since authored three books about her experiences, hoping to bring awareness to a condition that few people understand.<\/p>\n

Realizing that more needed to be done to support EB patients, Abrar expanded her efforts beyond individual initiatives<\/h2>\n
\n
\n

 <\/p>\n

\n
<\/div>\n
\n
<\/div>\n
<\/div>\n<\/div>\n<\/div>\n
<\/div>\n
<\/div>\n
\n
View this post on Instagram<\/div>\n<\/div>\n
<\/div>\n
\n
\n
<\/div>\n
<\/div>\n
<\/div>\n<\/div>\n
\n
<\/div>\n
<\/div>\n<\/div>\n
\n
<\/div>\n
<\/div>\n
<\/div>\n<\/div>\n<\/div>\n
\n
<\/div>\n
<\/div>\n<\/div>\n

 <\/p>\n

A post shared by \u0627\u0654\u0628\u0631\u0627\u0631 \u0627\u0653\u0644 \u0639\u062b\u0645\u0627\u0646 | EB \ud83e\udd8b (@abrar_alothman)<\/a><\/p>\n<\/div>\n<\/blockquote>\n